Resources
The following information resources provide guides to common conditions and their treatments. Please use them to supplement the information provided in your consultation with your Paediatrician or Psychologist. We recommend only referencing the resources which your clinician has directed you to. These resources should not be used as your primary source of information or as a substitute for individual advice provided in consultations.
Allergy Testing
Allergy Testing
The ADAPT trial
Information about the ADAPT trial
There is an exciting peanut oral immunotherapy project that has commenced in Australia. This is a major trial of food immunotherapy in Australia and has been recruiting infants 12 months or under with demonstrated peanut reactions. It is being conducted in 5 states of Australia, with these infants to commence slow introduction of peanut under supervision. This study follows on over 10 years of overseas research and also local research into peanut oral immunotherapy. This may lead the way for translation into future management of peanut allergy.
Attention Deficit Hyperactivity Disorder (ADHD)
Information about ADHD
- ADHD Consumer Companion (Australian ADHD Professions Association)
- What is ADHD?
- ADHD Factsheet from Learning Difficulties Coalition NSW Inc.
- Talking About ADHD Poster (Australian ADHD Professions Association)
- Patient Explanation: Helping Patients, Parents and Professionals understand about ADHD
- Kids Like Me: a children’s ADHD ebook from the AADPA featuring original illustrations from young Australian’s with ADHD aged 5-18. It aims to help protect the self-esteem of children with ADHD, educates and promotes adaptation and personal empowerment.
- ADHD – A Guide for Parents
- ADHD – A Guide for Children
- ADHD – A Guide for Teenagers
- Strategy and Advice for Teachers and Parents of Children with ADHD
- ADHD School Supports & Adjustments Infographic
- Australian Evidence-Based Clinical Practice Guideline for ADHD Factsheet: Non-Medication Intervention Overview
- Australian Evidence-Based Clinical Practice Guideline for ADHD Factsheet: Types of Non-Medication Intervention
- AAPDA Information Sheet: How to talk to your child about their ADHD
- AAPDA Information Sheet: Post ADHD Diagnosis
- AAPDA Information Sheet: What is it like to have ADHD
- Video: Let’s Talk about ADHD
- Video: Infographics – What is ADHD?
- Video: Dr Hallowell ADHD “RaceCar Brain”
Autism Spectrum Disorder (ASD)
Articles
What is Autism?
A guide from the Autism association (ASPECT) to explain Autism Spectrum Disorders.
Source: March 2017, Autism Spectrum Australia (ASPECT)
What is Autism? A pictorial guide.
A pictorial guide to some of the differences in people on the autism spectrum in the areas of social communication/interaction and restricted and repetitive behavior, interest and activities.
Source: Amaze.org.au
What is Autism? Characteristics of autistic people.
Characteristics of autistic people in the two main areas: social communication and interaction and behaviour, interests and activities.
Source: Amaze.org.au
Autism Spectrum Disorder Factsheet.
Source: Learning Difficulties Coalition NSW Inc.
Autism: What Next? is a project from Autism Awareness Australia (AAA).
A video explaining the autism spectrum.
Source: Autism Awareness Australia on Vimeo
Explaining Autism to My Child
Parents Guide on explaining autism to their children.
Source: Avaleen Whelton, ausometraining.com
Video: Amazing Things Happen – by Alexander Amelines
Alexander’s film gives an uplifting introduction to autism for young non-autistic audiences, aiming to raise awareness, understanding and tolerance in future generations.
Source: 2017, National Autistic Society
Video: DAD…a film about autism and fatherhood
A short documentary following the often untold stories of fathers with children on the spectrum, DAD shares the experiences of twelve Aussie dads as they navigate the world of parenting and autism.
Source: 2018, Autism Awareness Australia
Autism: What Next? – Help with navigating an ASD diagnosis
A go to resource for families navigating a new diagnosis of Autism Spectrum Diagnosis.
Source: Oct 2021, Autism Awareness Australia
Autism Spectrum Information Booklet
This booklet is a starting point for people with a recent diagnosis, parents/carers of a newly diagnosed child or adult, agencies, professionals and students learning about the autism spectrum for the first time.
Source: 2016, Amazed Inc (www.amaze.org.au)
Spotlight on Girls with Autism
A comprehensive guide to greater visibility, better understanding and improving support for autistic girls.
Source: 2018, Victoria State Government Education and Training and Yellow Ladybugs
Professor Tony Attwood – Identifying ASD in Girls
A video of Professor Tony Attwood at The Annual Women’s Health Update, Sydney
Autism first signs and checklist for teenagers.
Source: thespectrum.org.au
Medicare Programs
Information on various Medicare Programs available to assist with ASD.
Source: Autism Advisor Program, Autism Spectrum Australia
Medicare Programs II
Information on various Medicare Programs available to assist with ASD.
Source: Amaze
ASPECT Satellite Classes in NSW
A complete list of ASPECT school locations and classes.
Source: Autism Spectrum Australia
ASPECT Schools
Aspect are leaders in education for children on the autism spectrum, providing dynamic, individualised learning for students.
Source: Autism Spectrum Australia
Information about Autism in other languages
Resources in a number of languages, followed by a description of how individuals and organizations can help Autism Speaks to adapt and translate its materials.
Source: autismspeaks.org
Genetics and Autism
This fact sheet describes Autism Spectrum Disorder (ASD) and includes a discussion of the symptoms, causes and available testing.
Source: genetics.edu.au
Learning Difficulties
Articles
What are Specific Learning Disorders (SLDs)?
Source: 2019, Dyslexia Speld Foundation
Learning Difficulties – A Brief Guide
Source: 2021, Learning Difficulties Coalition NSW Inc.
Understanding Learning Difficulties: A guide for parents
Source: 2024, DSF Literacy Services
Myths and Misconceptions about Specific Learning Disorders: AADPA webinar
Source: 2023, aadpa.com.au
Dyslexia Infosheet: A difficulty learning to read
Source: 2020, speldnsw.org.au
SPELD NSW InfoSheet on Adjustments for Dyslexia
Source: 2020, speldnsw.org.au
Dyslexia Infographic for Teachers: Student Supports
Source: 2023, Learning Difficulties Coalition NSW Inc, ldc.org.au
Dysgraphia Infosheet: A difficulty with spelling and written expression
Source: 2020, speldnsw.org.au
SPELD NSW InfoSheet on Adjustments for Dysgraphia
Source: 2020, speldnsw.org.au
Dyscalculia Infosheet: A difficulty with mathematics
Source: 2020, speldnsw.org.au
SPELD NSW InfoSheet on Adjustments for Dyscalculia
Source: 2020, speldnsw.org.au
Language and Communication Disorders
Movement and Coordination Disorders
Mental Health
Articles and Support Links
- Headspace support pages for young people
- Headspace support pages for carers
- Lifeline
- Kidshelpline
- Mental Health Intellectual Disability Hub at Sydney Children’s Hospital Network
- Child and Adolescent Mental Health Services (CAMHS)
- Grow Your Mind: Providing engaging, evidence-based positive mental health strategies for educators, children and families of children aged 3-12 years old
- Facts on Anxiety in Children (mq.edu.au)
Support for children and adolescents with disabilities
Going to School
Schooling in NSW
Source: Education Standards Authority, NSW Government
A Parents Toolkit School issues for students with disabilities
Source: 2013, Disability Advocacy NSW
School Readiness
Source: Learning Difficulties Coalition NSW Inc.
Early Intervention
Early Intervention programs through the NSW Department of Education
Source: Education, NSW Government
Early intervention support classes to prepare for school
Source: Education, NSW Government
Transitioning to School
Transitioning to School in NSW – part 1
Source: Education Standards Authority, NSW Government
Transitioning to School in NSW – part 2
Source: Education Standards Authority, NSW Government
Ready. Set. School!: A Step by Step Transition to School Guide from Reimagine Australia
Source: 2020, Reimagine Australia
HSC and Disability Provisions
HSC in NSW
Source: Education Standards Authority, NSW Government
NESA HSC disability provisions guide for teachers and parents
Source: 2020, NSW Education Standards Authority
Medicare Programs II
Information on various Medicare Programs available to assist with ASD.
Source: Amaze
NDIS and Medical programs
Information about NDIS (for all ages)
Source: ndis.gov.au
Early Childhood Early Intervention – How the NDIS can help your child (for children under 7 years old)
Source: 2017, ndis.gov.au
Lifestart: Your main contact for the NDIS (for children under 7 years old)
Lifestart is your starting point for a referral to NDIS if your child is under 7 years old and if you live in the Central Coast, Illawarra Shoalhaven, Nepean, Blue Mountains, South East Sydney or Sydney areas regions.
Source: lifestart.org.au
Medicare Programs
Information on various Medicare Programs available to assist with ASD.
Source: Autism Advisor Program, Autism Spectrum Australia
Medicare Programs II
Information on various Medicare Programs available to assist with ASD.
Source: Amaze
Microarray Testing
Source: genetics.edu.au
Medication Information
Attention Deficit Hyperactivity Disorder (ADHD) Medication
- Answers to common questions on your treatment with: Ritalin and Ritalin LA
- Concerta Information Pack
- Things you need to know about Vyvanse
- How to take Vyvanse – A guide for patients with ADHD who have been prescribed Vyvanse
- Your Guide to INTUNIV
- How to take INTUNIV
- Guafancine – Information for Parents and Carers
- How Strattera Works
- Strattera Information Booklet
- Information About Stimulant Use in Children and Adolescents
- Guidelines for prescribing stimulants in NSW – Parent letter
- ADHD Stimulant Prescribing Regulations & Authorities in Australia & New Zealand (aadpa.com.au)
Other Medication
- CLONIDINE – Parent Information
- FLUOXETINE – Parent Information
- ESCITALOPRAM (Lexapro) – Parent Information
- RISPERIDONE – Parent Information
- Depression: Medication guide for parents
- Teaching children how to swallow tablets and capsules
- Teaching Children How to Swallow a Pill – On Call for All Kids
- Use of medications in competitive sport
- Medicines for Children Guide (UK)
Sydney Children’s Hospitals Network factsheets
Eating and Sleeping
Forms
Forms
- CADDRA Teacher Questionnaire
- Teacher Questionnaire for High School Students
- Vanderbilt Initial Teacher Questionnaire
- Vanderbilt Initial Parent Questionnaire
- Vanderbilt Follow-up Teacher Questionnaire
- Vanderbilt Follow-up Parent Questionnaire
- ADHD Adolescent Self-Report Questionnaire
- Spence Children’s Anxiety Scale – Parent Questionnaire for 6-18 year-olds
- Screen for Child Anxiety Related Disorder (SCARED) – Self report and parent scale for 8-18 year-olds
- Australian Scale for Asperger’s Syndrome
Useful Links
Allergy
ASCIA (Australian Society of Clinical Immunology and Allergy)
Arthritis
Asthma
Attention Deficit Hyperactivity Disorder
Autism Spectrum Disorder
Cerebral Palsy
Constipation
Developmental Milestones
Diabetes
Eczema
Epilepsy
Fetal Alcohol Spectrum Disorder (FASD)
Headache
Mental Health Support
Mindfulness and Meditation Apps
NDIS
Parenting information and support
Raising Children Network information
https://raisingchildren.net.au/